May 18, 2024



‘My little girl is human time bomb – she’s only person in the world with her illness’

The Mirror UK

By Jessica TaylorReal life features writer

15:54, 8 Nov 2021

Days after Ruby Smith was born, her mum Claire Parsons noticed something unusual about her behaviour.

Her four-day-old tot wouldn’t feed and was holding her breath – something her mum described as a bit like apnoea.


“I thought maybe it was a little bit of wind or reflux. It was only momentarily each time,” Claire, from Bedford, told The Mirror.

Read more…